Does anyone here pray??? - October 19th, 2004 at 12:00 AM
If anyone here prays my family is now, and is going to be for some time, in need of all the prayer we can get!! We just got soem VERY BAD news!! I know I am very new here but need prayer soooo much now!! Thanks to those who will begin prayer on our behalf!! May God abundantly BLESS you and yours!!
(If this is considered inappropriate here, please forgive.)
My baby sister's oldest daughter was born with many things wrong with her, but just this weekend we learned that the worst of all is that she has Leukodystrophy !! And now that we know something about this group of diseases--it is likely that my sister (her mother) has the adult version of this. My niece, Brittany is only 10 yrs old and has just been diagnosed with the 2nd version of this. There is also a version which afflicts infants. None live more than 15 yrs--many much less. My sister doesn't know about this diagnosis yet (she doesn't have custody of her girls and so doesn't see them often). My sister's other daughter, Chelsea, 8 yrs old, apparently is ok, but I am sure they will test her as well now. There is no cure, nor any treatments that can do anything really. This is one of life's unfair things!! And I do NOT blame God--for He is not the author of death and destruction!! This is NOT His Will for Brittany or my family. For those who do not read the info on the link--my niece will in all likelihood be a vegetable or dead in 10 yrs or so. This is one of the most unkind diseases I have EVER heard of!! It would be soooo great to have someone to blame but there is NO ONE to blame. Please pray for each of us in this family to have whatever it will take for us to get through this. But especially for Brittany that she will that God is not punishing her by the terrible things that have happened to her and are happening to her now. Well, and her sister is very close to her (they are less than 2 yrs apart in age) and she will need all the strength and love she can get throughout all of this!! I do not know what we need but may God provide everything that we need!! This is a BIG shock to me and I cannot express how truly and deeply upset I am!!! I am today more thankful than I have ever been that I have been unable to have children. God KNOWS what is right for each of us and if I had been able to have the children I had so desperately wanted when I was much younger, my children could have not lived or been born with this condition--in any of it's three versions. This is not the only bad disease running in the family. My Mother's mom had a stillborn boy before her--some disease that only effects the males, and skips generations and is carried and passed on by the mother?!! (According to my Mother.)
(If this is considered inappropriate here, please forgive.)
My baby sister's oldest daughter was born with many things wrong with her, but just this weekend we learned that the worst of all is that she has Leukodystrophy !! And now that we know something about this group of diseases--it is likely that my sister (her mother) has the adult version of this. My niece, Brittany is only 10 yrs old and has just been diagnosed with the 2nd version of this. There is also a version which afflicts infants. None live more than 15 yrs--many much less. My sister doesn't know about this diagnosis yet (she doesn't have custody of her girls and so doesn't see them often). My sister's other daughter, Chelsea, 8 yrs old, apparently is ok, but I am sure they will test her as well now. There is no cure, nor any treatments that can do anything really. This is one of life's unfair things!! And I do NOT blame God--for He is not the author of death and destruction!! This is NOT His Will for Brittany or my family. For those who do not read the info on the link--my niece will in all likelihood be a vegetable or dead in 10 yrs or so. This is one of the most unkind diseases I have EVER heard of!! It would be soooo great to have someone to blame but there is NO ONE to blame. Please pray for each of us in this family to have whatever it will take for us to get through this. But especially for Brittany that she will that God is not punishing her by the terrible things that have happened to her and are happening to her now. Well, and her sister is very close to her (they are less than 2 yrs apart in age) and she will need all the strength and love she can get throughout all of this!! I do not know what we need but may God provide everything that we need!! This is a BIG shock to me and I cannot express how truly and deeply upset I am!!! I am today more thankful than I have ever been that I have been unable to have children. God KNOWS what is right for each of us and if I had been able to have the children I had so desperately wanted when I was much younger, my children could have not lived or been born with this condition--in any of it's three versions. This is not the only bad disease running in the family. My Mother's mom had a stillborn boy before her--some disease that only effects the males, and skips generations and is carried and passed on by the mother?!! (According to my Mother.)