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#87379 Jul 11th, 2007 at 04:45 AM
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#87497 Jul 11th, 2007 at 06:35 AM
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That sounds like good news!! Still praying for her! prayers
That precious little baby has a LOT of prayers going up for her from all over, so you know that she is in God's hands!!!


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Shirley4 #87699 Jul 11th, 2007 at 01:12 PM
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So, Maddie did really well all night long with feeding. Today they upped the feeds to 12cc (the amount that she has never liked) and she only had 2cc left after 3 hours, so that is GREAT. We will call shortly to find out how the second 12cc feed went. Maddie has always digested the first 12cc feed but never the 2nd, so we'll see what happens.

She had another blood transfusion today (her fourth one so far). We knew she'd be getting one soon because we've been watching the hemoglobin level falling everyday, but yesterday her whole body looked pale and we knew she needed to be refilled (what we call it lol ). She had her eyes looked at for something called ROP which is common in preemies. Basically the eyes make lots of extra little blood vessels in the back of the eyes....it usually clears up after time. Maddie doesn't have it tho...so that's good. They put drops in her eyes to dilate them and to numb them a bit and then put a spring loaded thingy in them to hold the eyelids open. So apparently she screamed her head off for the entire thing. her little eyes were all red and puffy when we got there today. We think one of them will be a black eye by tomorrow. ...but that will go away in time. I think that is all for today. :)


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#87742 Jul 11th, 2007 at 01:49 PM
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No, I can't give blood for her. I am O positive and she needs O negative. Now, Stephen has the same blood type as her....B+, but donated blood has to be treated before it can be given. They have to test it for all sorts of stuff first. Preemies get anemic because their bone marrow is too immature to keep up with their usage....especially when blood is being draw everyday for different things.

Stephen called about her last feeding. There were 2cc left over, so she did digest a full 12cc if you factor in the 2cc remaining from the previous feed that were re-fed to her. So, this time, they re-fed the 2cc again and then gave her the 12cc on top of it. The nurse said that at 4:45, Maddie was not a happy camper...she was crying up a storm. Nurse thinks she was hungry since she stopped after the feeding started. Now we just need her to poop today. She hasn't pooped since lastnight and dr. said she needs to poop....but didn't say what he'd do if she didnt'. I don't wanna find out!


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hisgal2 #87745 Jul 11th, 2007 at 01:52 PM
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Oh, the poor little darling. Our preemie niece went through alot of ups and downs before we got her home. It was hard seeing what she had to go through. kissie for Maddie.


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#87839 Jul 11th, 2007 at 04:44 PM
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prayers Still praying for little Maddie- sounds like they are working well too- funny to be praying for a poop diaper.... but whatever she needs....
We had the ups and downs with the twins too- one would do fine and the other would have a problem- next day would be the opposite... to see them now you would never believe it... they are so big!

Nana


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Nana's15 #87855 Jul 11th, 2007 at 05:21 PM
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thumbup it's weird to be praying for a poopy diaper, but i'm so glad all else is going well! prayers still praying and kissie thanks for the updates!

#87966 Jul 11th, 2007 at 07:30 PM
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prayersprayin Madeline fills her diaper. kissie


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sibyl #88305 Jul 12th, 2007 at 09:02 AM
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Thanks for all of your poopy diaper prayers! It worked!! We called the NICU this morning to find out what was decided during rounds because we decided we needed to catch up on sleep this morning. Well, apparently between 11:30 lastnight and 10:00 this morning, Maddie had a "massive" poopy diaper and another good sized poop along with 2 smaller poops. So that is GREAT. Her night feedings did not get digested quite as well as the day ones. She had residuals of 8cc which they through away and gave her the usual 12cc and then one of 4cc which they re-fed her and gave her 16cc......the 16cc is her next step with feeding that was decided during rounds. We'll be going in at 3:30 to visit with her today, so that's when we'll see how she's tolerating the new amount of feed. Here's hoping and praying!


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#88377 Jul 12th, 2007 at 10:05 AM
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It's a 30% increase in her feed. I think it just sounds like alot because the number is larger. Going from 8cc to 12cc was a 50% increase! If the dr. will tolerate the residuals, I think she'll be ok with it.


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#88411 Jul 12th, 2007 at 10:54 AM
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gringood news glad she filled her dieaper
still keepin ya all in my thoughts and prayers always kissie


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sibyl #88433 Jul 12th, 2007 at 11:12 AM
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Sounds like you got some good news Jenn! Thoughts and prayers!

#88538 Jul 12th, 2007 at 04:34 PM
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She seems to be doing OK with the feedings. At 5:00 she had 4cc left...which isn't much. So, they threw that away and gave the 16cc. She sucked on her binky pretty well today too. We ordered some special binkies that are just like the ones that the NICU uses, but just a little smaller. They are special made for babies in the NICU...they don't get in the way of the CPAP or nasal prongs. I ordered them on Monday and hope they are here tomorrow. Anyways, that's all for tonight.


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hisgal2 #88559 Jul 12th, 2007 at 05:05 PM
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prayers of thankfulness for the poopy diaper/s. It truly is a blessing the little ones do not remember what they had to endure, while those responsible were helping them fight. May the angels continue to enfold Maddie in their gentle embrace.


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~NL~ #88599 Jul 12th, 2007 at 05:46 PM
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so glad to hear the good news about Maddie.

I too was a preemie--and I can attest to the fact that you do not remember things like this. The first memory I can recall (here spur of the moment) is being about 18 months old--& sitting in a high chair on a concrete patio in front of a house. (I know how old I was because when i described the memory to my mom, she said I had just described where we lived on Scott Field Air Base in Belleville, Il. and I would have been about 18 mo old.


I will continue to keep all of you--but especially Maddie in my thoughts & prayers.
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Last edited by JunieGirl; Jul 12th, 2007 at 05:47 PM.

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JunieGirl #88634 Jul 12th, 2007 at 06:39 PM
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At 8:00 they pulled 7cc from her belly, threw it away and gave the 16cc again. If she continues to do this, I wonder what the dr. will do. Hopefullly just tell them to keep trying.


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hisgal2 #88637 Jul 12th, 2007 at 06:50 PM
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thumbup keeping trying is a good thing! thank you for the updates jenn kissie

i'm so glad you have a good team.

#88651 Jul 12th, 2007 at 07:33 PM
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I am thankful for the updates also........I haven't always posted, but I am in here reading every post you make. kissie Continued prayers for little Maddie. prayers

#88663 Jul 12th, 2007 at 07:47 PM
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I forgot to mention that she weighed 4lbs. 7.5ozs today.

Stephen just called to see how the 11:00 feed went. They pulled out 6cc, threw it away, and gave her another 16cc. So, now we're going to bed and we'll go to the hospital in time for rounds tomorrow. 'night!


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hisgal2 #88668 Jul 12th, 2007 at 08:00 PM
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thumbup so glad she broke the 4 pound mark! sleep tight jenn

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She is SOOOO precious. Still praying for you all here....
:)Geegee

geegeeburr #88691 Jul 13th, 2007 at 02:50 AM
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Wow, she is growing fast.


~~Tam~~Those who think country life is simple....have never lived on a farm.
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Sunflowers #90349 Jul 14th, 2007 at 09:22 PM
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We just got home from the hospital and I wanted to post an update before I went to bed. Maddie is doing GREAT. Yesterday her feeds were put to 20cc every 3 hours (cant remember if I told you that) and today she was upped to 25cc every 3 hours. She is actually doing better with these feeds than she did when they switched to the 20cc. Today her weight was up to 4lbs. 11.5 ozs. Because her feeds are up and doing well, they have stopped the TPN (fluid nutrients that are good, but if on them too long will become toxic) and lipids (liquid fats). She was put on clear fluids and the nurse said that by the end of the week if she keeps doing as well as she is now, she'll be on full feeds and off the fluids. So, all is well. 'night!


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hisgal2 #90353 Jul 14th, 2007 at 10:30 PM
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clap Great update, Jen. What wonderful news to read!! Prayers continue to fly in your family's direction. prayers Sleep well, you must be exhausted.


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~NL~ #90397 Jul 15th, 2007 at 04:34 AM
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congratulations! clap i'm so glad she is perking right along.

now, get some rest for you and stephen kissie you two have to be exhausted!

hisgal2 #90629 Jul 15th, 2007 at 10:13 AM
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Jen, what wonderful progress for little Maddie- I keep checking in and reading- and still praying too... just don't always post- she is a little doll... won't be to long she will be keeping you up at night at home too!
Nana

Last edited by Nana's11; Jul 15th, 2007 at 10:14 AM. Reason: forgot color..DUH!

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Nana's15 #90631 Jul 15th, 2007 at 10:20 AM
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Fantastic News Jenn clap clap grin I sure that helped you get a restful night's sleep! kissie snooz Maddie is certainly our little fighter isn't she!!!!!


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angelblossom #90634 Jul 15th, 2007 at 10:27 AM
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clap You GO Maddie!!


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Wrennie #90956 Jul 15th, 2007 at 08:28 PM
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Glad to hear everything is going so well for Maddie. Please take care of yourself and Stephen too. You both need to be well so you can be there for Maddie. Continued prayers for you all. thumbup


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#91159 Jul 16th, 2007 at 06:59 AM
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Thinking of Maddie everyday.


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Sunflowers #91350 Jul 16th, 2007 at 12:14 PM
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Maddie did well with her feeds all through the weekend. They steadily increased them and today she was put up to 35cc/3 hours. That is what they call her "full feed"....it is what she should be eating. They took her off of all IV fluids. The only thing she gets in her IV now is what they call D-10. It has some dextrose and heparin running through her PICC line and it is only running to keep the PICC line good. The dr. said that if she tolerates the full feeds for a couple days, then they will take the PICC line out and she won't have any IV's in at all. They have changed her IV meds to oral meds. The only thing she really gets as far as medicine is caffeine, arithromiacin (for bowel movement), reglan (for bowel movement),and prevacid (in case of reflux). So, the weekend was a good one. :) The dr. said that once she is on full feeds for a couple days and has shown that she can grow on the full feeds for a few days, that they will try her off of the CPAP again.....maybe the beginning of next week. Apparently the TPN that she was on can cause the lungs to mature slowly, so that was probably why she had trouble last time they tried. If she tolerates being off of the CPAP and breathes well on room air, then she will graduate to the NSCU (neonatal special care unit) which is basically the feeder/grower side. Once there, she'll be taught to breast or bottle feed and will be going through testing to go home. So, that's all for now.... tonight is BINGO night!!!! woohoo!!


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hisgal2 #91351 Jul 16th, 2007 at 12:16 PM
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Thank you! kissie

hisgal2 #91352 Jul 16th, 2007 at 12:18 PM
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Oh Jenn!! That is the most wonderful news clapWooHoo clap for Maddie!!!

I will pray cor continued success---yeaaaaaaaaa thumbup


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JunieGirl #91457 Jul 16th, 2007 at 04:19 PM
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thumbup wonderful clap

and prayers prayers continue

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Maddie continues to do well on the full feed. They are supposed to take her PICC line out today! Dr. mentioned maybe taking her off of the CPAP on Friday. I asked if he was on this weekend and he said no and then I asked if we could wait until Monday for that. He said "I could probably do that" lol He knows I'm nervous about that. Tomorrow they are adding fortifier to the breast milk to give it the calories that she needs. She has lost weight 3 days in a row. It is normal for that to happen after they end TPN and lipids. That's about it.

Oh, I can't remember if I posted this before, so I'm posting it now. This is the link to our website. Stephen updates it every now and then and puts new pictures and adds new entries to the blog. Enjoy...
http://www.vermeire.net/stephen-jenn/


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hisgal2 #92104 Jul 17th, 2007 at 01:17 PM
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clap Maddie!!!

I am so thankful things are moving along in a positive direction, Jen. Soon Maddie will be home for you to cuddle with all yoru heart desires. I love the pics on your web site!

Shirl


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thumbup me too!!! clap

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Originally Posted by ~NL~
clap Maddie!!!

I am so thankful things are moving along in a positive direction, Jen. Soon Maddie will be home for you to cuddle with all yoru heart desires. I love the pics on your web site!

Shirl


I could not have said it better. Congratulations!!


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JunieGirl #92323 Jul 17th, 2007 at 08:33 PM
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clap kissie


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Today we were surprised when the doctor decided to take Maddie off of the CPAP machine! He was originally talking about taking her off of it on Friday, but the nurse asked if they could do it today and he said they could try it. The nurse didn't waste any time either! Before rounds was even done, that machine was off and the tube and cap were off her head! lol She was doing really well without the CPAP when we left the hospital. We'll see what happens today and tonight. Doctor said that if she does well off the CPAP today and tonight that they will think about introducing Maddie to the breast. Not so much to feed, but just to get used to it since she's only been shown the pacifier.

Tomorrow, Stephen, his mom, and I are going to take the neonatal CPR class. The hospital offers it for free and I think that we are required to take it before we can take Maddie home, so we figured we'd get it out of the way. I'm already CPR certified for another year, but the nurse who is teaching the class tomorrow said that things have changed since I had my last class. She also needs someone to sign up for the class so that she has an hour of free time to have a meeting with the hospital board. She is inventing a new CPAP that will stay on a baby's face better, so we decided to help her out.

I think that is all for now. We did take pictures today and I will post them, but I need to get some other stuff done before I do that and we are going to go for a bike ride soon too. So, probably this evening I will post those pictures. :)


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